The Universe, Me and a frog

It has been almost a year since true hell came to my doorway and looked down upon my face. Gave a huge smile and said your mine for the next 5 five years. Cancer fucking sucks. I thought Parkinson’s disease was enough, but man i lost so much muscle and the chemo messed my head and nervous system up so bad.. Seriously there are some things that one can’t quantify truly until you’ve lived through them. I’ve been shown the kindness of strangers and the disengaugement of family. Witnessed good families fall apart and bad ones turn good again. Loved ones passed while friends faded and fluxed. I find these days a friend is only as good as they are on their worst day. That is depth of a friendship I’ve found.

As my carer likes to kid with know that Ive gotten “old” Ha!!! Not even 5o yet 😎🎨🎉 As I’ve found as I’ve matured that wisdom gives me site but Parkison’s has made me emotionally blind or hypersensitve to my desires, paint, music,companionship food, love, sex, ect…. The Agnosia plays a tricky little bugger in the mix because it takes foresite away. So where one person may think jumping in that tank of hungry sharks sounds like a bad idea. My brain is a tad more likely to think…hmmmm. It might be okay or hmmm I’ve never done that before might as well before PD or Cancer finishes me off. But in reality getting eaten by sharks is like my hugest fear ever lol. Sooo yeah. Life with Parkinson’s disease has been a trip. A true test of heart and faith. Always chasing an ever changing disease with drugs that are just as bad as the disease ie; side-effects. Anyhow i hope that love and peace find you in this life time. Do truly cherish those close to you eachday. Be as present in your life as possible and if your living a life you don’t want to live then your not really living your just alive. I myself with my ever shinking circle of mobility and friendships chose to live right here right now. For yesterday is gone and tomorrow is never promsied for death as life often comes unannounced.

All my love Always.



Pain and Parkinson’s disease


An aching shoulder is a fairly common early symptom and heralds the side of the body Parkinson’s will start. It is not uncommon to be mistaken for arthritis. At some point, most people with Parkinson’s experience aching, stiffness, numbness or tingling. For a small percentage of people, pain is the most disabling symptom of the disease. “Thats Me :(” Ive alwas been an over achiever.

Poor posture can lead to musculoskeletal pain. Neck or back arthritis can contribute to nerve or root pain. Dystonia—the sustained twisting, spasms, or posturing of part of the body—is perhaps the most severe cause of pain in PD. Often it occurs early in the morning, when the last levodopa dose has worn off, and can be relieved by a new dose of medication. Extreme restlessness, called akathisia, is a form of discomfort that prevents some people from being able to sit still, lie down, eat at a table, or attend social gatherings. Rarely, Parkinson’s causes a form of pain called central pain.
Pain in Parkinson’s sometimes is caused by the disease and other times is related to medications. Many therapies are available. By doing a careful examination and taking a detailed medical history, your doctor can diagnose the source of your pain and suggest appropriate treatments.
Parkinson's awareness month

Related Resources from the PD Resource List

Pain in Parkinson’s Disease
Category: Non-Motor Symptoms and Complications of Parkinson’s
Resource Type: Publications
Publication Date: 2005
Author: Blair Ford, M.D.
Publisher: Parkinson’s Disease Foundation
Cost: Free
Toll Free: (800) 457-6676
Associated URL:
Address: 1359 Broadway, Suite 1509
City: New York Zip: 10018
Language: English
State: New York
This fact sheet addresses the often overlooked painful symptoms of PD and describes an approach to diagnosing and treating the various pain syndromes that may occur. Also offered in Spanish.

View all Resources Related to Pain, Other Nonmotor Symptoms and Parkinson’s