I wish I knew what to say. I wish knew where you were or what happened. I had cancer , you came to see me , I didn’t die, I tried so hard to live so that we could have a life together. I know it wasn’t the life we wanted to have or that we had as a family. I’m sorry for that change in our lives, but please understand that all the choices were not mine. Many of those choices were made for me or my reactions to things around me. I never meant for one second to lose you in all of this. Slowly as the chemo-brain fog and radiation treatments fade. In between the moments where Parkinson’s disease doesn’t have me running every which way. I see things clearly and yet I don’t understand why you are not here with me from time to time . Why did you have to disappear and where did you go. What happened between us that would take you so far away. I can’t imagine myself ever doing anything that would make you leave like this. I tried to give our family everything I didn’t have growing up and in many ways I did. We wanted for nothing. Little did I know the thing I didn’t give you was myself. Even though I gave you everything of myself , after 50,60,70 hrs of work a week providing for the family. There was barely waking time to be a family. Though my mind is filled only with joyful memories I can only assume that your are not. For if your childhood wasn’t the gift I thought it was I’m truly sorry. I did everything, gave everything I had and in the end when I got sick , it felt like everyone left . Left me to die , let me have this burden of Parkinson’s alone with no family to find shelter upon. No home to come home to. Then came the cancer and soon to follow a line of humans who would have rather taken everything from me rather than see me well. Tisha and Paula. Shame on you. So here I am yet again writing to you, writing to the world cruel as it is. Where are you? What happened to you? To us. I am here , I alive, not entirely lost to my diagnosis, painting and writing, growing green things and food to eat. Living a lift inspired by living well. I’m not rich anymore, I don’t have anything to call my own. No Physical reminder of my past. All that stolen from me in Arizona. Everything is worked for all my life of gone. Every gift, memory of my life ripped from me. Now I am truly and only a representative of myself. No fancy clothes or nice things, no house of my own nor future to offer. But I am and have always been a kind and gentle soul. Generous and kind to a fault. Naive to the true evils of man and womankind alike. I miss you my son and I miss my step daughter as well though it’s odd to say it that way as I never raised you as a step anything. So here I reach out knowing not what else to do. Here I leave a story written from me to you. In hopes before I’m gone , before PD takes my fully my ability to even recognize your face I hope with every heartbeat and every breath that I’ll have the chance to know you again. Wherever you are and whatever you’re doing, please know that you are loved and cherished, missed dearly with every fiber of my being. I love you boo and wish I knew what to say or what to do to make you come back to me. Sincerely your Dad, your father. Benjamin M Prewitt.
If this is a dream do not wake me for I have found heaven in the heart of this darkness. In the hardest of times I gave it all up. I had somehow become unworthy of love and happiness as it had been known to me. I had become more, or maybe less than I was as a man. Either way when the dust settled I was alone, barren of the seed and fruits of my life long labor. All my memories dashed upon the rocks of a misguided future and worst still,there were monsters waiting at home to devour what was left .
You didn’t leave a stone unturned this universe of God and mankind. I , you have deconstructed this human beast into a diffrent creation, something of joy and beauty, sadly cursed with the passion of a thousand men the heart of a lion, the soul of saint, tongue of the devil and hand of a hero.
I come to you on bended knee take me as I am. Take me for me and I’ll give you all that I be.. I have nothing and everything to give,.the only thing left is me.
Thoughts and expressions of my life.
609pm pst and I’m lost in thoughts. I have been all day. With the tragic and sudden end to my attempt at a better life just recently. Then coming home to a house being sold. A 60 notice to move, a law battle to regain my rightfully paid for and earned Cigna disability income. A battle to retrieve my personal,medical and legal items from Arizona plus move hereove to a new house in Salem is rediculous and I’ve almost had enough. It’s much for one person to bare. My son and daughter have forgotten about me and really I’m over it. Everytime I try and fix this broken thing that is me I end up making things worse. Seriously right now is beyond me, beyond anything I know how to cope with.
I’m grateful for my beating heart I have but right now on this day at this time I am miserable. Why can’t I simply put myself in an environment where I can paint and write in peace?!
Either I become involved with my caregivers or I’ve a family member and that’s not a fair burden to put on A person who isn’t a true employee. There is to much family and not enough business of health care. Often in those cases or to easily one party can feel used or unappreciated over time.
At this point I’ve given up on love. This last experience was exactly, literally my largest fear as a disabled Adult realized. Even as a grown man I can not tell you how terrifying it was to find myself away from everything I know in the hands a person I thought knew but entrusted my life and well-being to have that person turn against me and force me into a homeless shelter with no notice or justified provication.
I don’t know, wtf I’m doing. I’m fucking still having flashbacks backs of that day and night in the shelter, then the 4 days of travel. Me, my leg brace,knee brace, cane 2,boxes and 2 bags and no help. No caregiver no friends or friendly faces. Pill schedule, diet and life thrown to the wolves like some disposable cup or common piece of litter.
Now just for my sanities sake I sit here and write it out, try and replay the day , weeks, years of the last few and find where Ive gone wrong. I’m I forever lost with disease of Parkisons, never again to be able to decern the right choice from the wrong choice. I’m simply to tired and work to go on losing. I can’t, don’t have the strength of soul anymore. I don’t have the physical strength or endurance of a young man anymore. I have the body and mind of a man who barely escaped cancer, isn’t nearly done with recovery from that and has been actively taking medication for Parkisons disease for 8 years.!!
All of this shit hitting me at once has me freaking done. I’m numb, I don’t know what door to choose and I’m not sure anyone can make that choice for me, but I’ve obviously proven time and time again over the last 5 years I can’t fucking make a sound choice to Save my life. Half my family and most of my friends have left my side specifically b cause of what Parkisons disease has done to my brains and emotional functions. Chemotherapy and radiation treatment didn’t help any especially straight to my head.
Honestly I’m not sure what to do with myself anymore. Sad to watch what I thought was a fairly successful life go so far wrong so far from what the center was. I try daily to just look at the bright side of life, I try every day to stay calm and loving. The kind of person who is compassionate and understanding, but I don’t know what goes wrong. It’s to hard on people when they can’t understand that a PWP often can’t hear their tone, nor came we normal autonomic controls over our diaphragm or esophagus muscles, mine even worse because of throat cancer treatment. Sorry I lost track, another thing that drives me nuts about Parkisons disease, focus… I have none, zip, zero, nada. I can’t even tell you how long it’s taken me just to write a few scattered paragraphs on a subject that it so near and dear to me.
Anyhow, I’m tired, I’m sick, I’m fearful of the future and honestly I’m tired of being used by other people. Always for their gain. People who force me into “Normal” situations knowing full well that I’m incapable of making clear and present good healthy choices and then get upset when I don’t react as expected… No shit people I have fucking advanced Parkinson’s Disease.. Sorry last minute vent.
I hope your life has been kinder than mine and if it’s not I pray that your will be.
Recently I’ve been going through some stuff that has taught me a lot about myself and others. I’ve learned I’m patient but only to a certain degree. I’ve learned I’m vulnerable and fearful of so much more than I ever dreamt of. Being forced to self examine is hard, even harder if you are being honest with yourself. I’m insecure and have a hard time communicating**which is funny bc I love words** I’ve learned that I need verbal and physical support from my companion or physical partner. I’ve learned that I feel more fufilled as a human if I’m preforming Acts of service for others. I’ve also learned that I prefer to have a partner. I’ve learned that I can be easily distracted by shiny things but I’m a loyal dog through and through. I’ve learned that yes you can have to many roommates 😂😂.
I’ve learned that my life is my life and I’m the only one who can make me happy.
The other day I was greated by a police officer who came to do a welfare check on me,. Then the lead organizer at OHSU center for health and healing called, followed by my neuropsychologist, and I had two visits from ppl making sure I was still alive. I explained to each that yes I’m heartbroken and depressed, sure I’ll admit it, I’m sick of this life, didn’t ask for it,feel cheated and robbed of everything I worked for..ect.ect.ect… well after this last episode of Let’s see how many failed human relationships can Benjamin have in a lifetime. 💔🎉🏁😢 But here’s the thing, I don’t want to die. I just don’t want to live this life… So what are my choices, continue on this same path?? No because that my friends will lead to my destruction. I will self implode and the darkness will eat me whole whilst I watch.
So I’m going to focus on my art work, focus on this new church I found and forget about the drama and hurt of my old life.
I was raised to be a good man in a bad world and I let myself get caught up in trying to be everything to everyone and forgot about my own soul. Well after my day of choices
1. To pull the pug.
2. Stay on this rock a bit more.
I’m going to be me, I’m a cancer survivor 1 year remission, pending CT/PET scan. Fingers crossed. I live eachday with Parkinson’s disease that effect all parts of my life,body,mind and soul. But those are just the things that happened to me on my journey from there to here. The person I want to be a person who is happy to wake up, has faith in the universe, God, Allah,Krishna whom ever. A person who looks forward to a day of great deeds and uplifting others while I paint and write of the adventures of human depths of mind,body and soul.
Sidenote: chemical depression and anxiety is the real deal. I thought I’d experienced depression before… No. Not even close, true chemical depression has me by the chin 🤔😉 and it’s a whole new level of hell I’d never imagined could be real.
Anyhow eachday is a gift and how do I know??? Because I just walked up to the edge and saw the truth and the truth is I’m not done. I’m not sure what my purpose is anymore,father, husband,lover,painter,poet,Sin eater,warrior, friend and mentor. Honestly I don’t know what comes next but I do know that each day I will do one thing just for me,just for myself and the child inside of me. One thing that is more than eat,walk, sleep**take meds every 2-3 hrs 😤.
I do know that I want to be happy and the only way to do that is to start with the very secondly at hand……. So I came here to write and get off my feet. I’ve been walking more than I should be, No car at the moment..long story lol. 💔 Another day.
Well my dear friends and family that come here to spy on and support me 😂😂😂 I love and appreciate you all deeply. I hope whatever you are and whatever you are doing, that you know you are loved, cherished and missed.