I have nothing good to say today. So I’m going to say everything by writing nothing. Well nothing compared to the whole I space I was ready to tare..
Two humans whom I’ve recently known have given me the opportunity to realize my greatest fears and pushed me to grow further than I realized I could and for that I’ll say thank you. May the good Lord take you sooner than later. Just saying 😉
609pm pst and I’m lost in thoughts. I have been all day. With the tragic and sudden end to my attempt at a better life just recently. Then coming home to a house being sold. A 60 notice to move, a law battle to regain my rightfully paid for and earned Cigna disability income. A battle to retrieve my personal,medical and legal items from Arizona plus move hereove to a new house in Salem is rediculous and I’ve almost had enough. It’s much for one person to bare. My son and daughter have forgotten about me and really I’m over it. Everytime I try and fix this broken thing that is me I end up making things worse. Seriously right now is beyond me, beyond anything I know how to cope with.
I’m grateful for my beating heart I have but right now on this day at this time I am miserable. Why can’t I simply put myself in an environment where I can paint and write in peace?!
Either I become involved with my caregivers or I’ve a family member and that’s not a fair burden to put on A person who isn’t a true employee. There is to much family and not enough business of health care. Often in those cases or to easily one party can feel used or unappreciated over time.
At this point I’ve given up on love. This last experience was exactly, literally my largest fear as a disabled Adult realized. Even as a grown man I can not tell you how terrifying it was to find myself away from everything I know in the hands a person I thought knew but entrusted my life and well-being to have that person turn against me and force me into a homeless shelter with no notice or justified provication.
I don’t know, wtf I’m doing. I’m fucking still having flashbacks backs of that day and night in the shelter, then the 4 days of travel. Me, my leg brace,knee brace, cane 2,boxes and 2 bags and no help. No caregiver no friends or friendly faces. Pill schedule, diet and life thrown to the wolves like some disposable cup or common piece of litter.
Now just for my sanities sake I sit here and write it out, try and replay the day , weeks, years of the last few and find where Ive gone wrong. I’m I forever lost with disease of Parkisons, never again to be able to decern the right choice from the wrong choice. I’m simply to tired and work to go on losing. I can’t, don’t have the strength of soul anymore. I don’t have the physical strength or endurance of a young man anymore. I have the body and mind of a man who barely escaped cancer, isn’t nearly done with recovery from that and has been actively taking medication for Parkisons disease for 8 years.!!
All of this shit hitting me at once has me freaking done. I’m numb, I don’t know what door to choose and I’m not sure anyone can make that choice for me, but I’ve obviously proven time and time again over the last 5 years I can’t fucking make a sound choice to Save my life. Half my family and most of my friends have left my side specifically b cause of what Parkisons disease has done to my brains and emotional functions. Chemotherapy and radiation treatment didn’t help any especially straight to my head.
Honestly I’m not sure what to do with myself anymore. Sad to watch what I thought was a fairly successful life go so far wrong so far from what the center was. I try daily to just look at the bright side of life, I try every day to stay calm and loving. The kind of person who is compassionate and understanding, but I don’t know what goes wrong. It’s to hard on people when they can’t understand that a PWP often can’t hear their tone, nor came we normal autonomic controls over our diaphragm or esophagus muscles, mine even worse because of throat cancer treatment. Sorry I lost track, another thing that drives me nuts about Parkisons disease, focus… I have none, zip, zero, nada. I can’t even tell you how long it’s taken me just to write a few scattered paragraphs on a subject that it so near and dear to me.
Anyhow, I’m tired, I’m sick, I’m fearful of the future and honestly I’m tired of being used by other people. Always for their gain. People who force me into “Normal” situations knowing full well that I’m incapable of making clear and present good healthy choices and then get upset when I don’t react as expected… No shit people I have fucking advanced Parkinson’s Disease.. Sorry last minute vent.
I hope your life has been kinder than mine and if it’s not I pray that your will be.
About every 4 months the moon slips beneath the waves in your eyes and turns the sea black with rage and fear.
I don’t know this person, this demon in our soul. Chewing on everything good and true in my life.
Such fear does this demon possess that I leaches the very hope and trust from my soul.
Such darkness hides the light in my eyes too. I look and I see emptiness and heartache ruthless self harm and deceit. Lies upon lies until we’ve become the “perfect person”
Hate is evil and I am tired.
So tired of the demons behind my eyes. Always waiting for a sign of weakness and fear. Stripping the love from my bones like ravenous dogs.
Torturous these thoughts are, demons taking my joy away consuming my mind with uselessness born only to harm and hate. I’ve learned a thing or two and I don’t trust easily especially after playing with fire only to get burned. But one forgiving broken soul to another I’m not sure which is worse the knowledge or knowing. The hearing or the hurting, the black hole left by each lie told to these blue eye.
I’m forgetting things…….
I can see the goal but have lost
The ability to plan it out…
The pain in my shoulders
Is bi-lateral…. It really really hurts
All….. The…… Time….. (7)
Thyroid what’s the thyroid?????
It controls what?….. Everything…. Shit.
1 in 40 is scary 3 in 5 years is scarier.
Cancer…. Parkinson’s disease. WTF.
My legs are forgetting how to step
“The shakes are coming”, “the shakes are coming”……
Honestly I’m scared.. This is scary shit. I rarely say it out loud and ponder on it even less but today as the pain is relentless and the fatigue never ever stops.
I can’t stop but think and wonder
How much can this human body take…. #alongfortheride
Thank you that’s all.
“A life in progress”