In the end which comes soon I hope you remember me well..I hope you think back to a time when was more kind, when life was more innocent and forgiving.
I’ve come here today to give an update on my life . Maybe someday you’ll visit here u like you’ve searched for me to find resolve. I must assume that you’ve chosen to let me go a long while ago . That is one thing out of this life that I regret. The loss of your trust, friendship and love has broken me. I guess a stronger person wouldn’t admit such defeat in world do cold and ready to devour any sign of weakness. This would the people I knew that I called friend, brother and lover have all gone for most part. A few reminders of the past that cling to the idea that maybe I was going through life with Parkinson’s and cancer, a bunch medicine for a few years that wasn’t right and a lemony snicket’s of bad luck and choices.
Well that’s all passed and now I find myself at a place in life where I’ve seen before. I’ve seen it in the end of life. In the next few days I’ll start a series of surgeries that I can hope to have the strength to recover from. Wednesday I go in and cyst ( ? cancerous? Idk yet) and bone sour from my inner ear. After I heal from that I’ve got torn labral tissue in both my right and left shoulder. Apparently one can fight to hard against the ridigty of Parkinson’s disease. It’s literally ripping me apart as I strive to let this beast consume me. During the course of x-rays and MRIs they have found numberous endochroma tumors on my spine T1-T2 and on my femural and humorous heads. Sooo we shall see it’s been my experience as I’ve watch those before me go that once the surgeries start they weakening begins and the body spends more time healing than growing.
I have wonderful woman in my life who cares deeply for the man I am , she believes in person I was and defends me as true loving life partner would and does. I have no real home anymore sans the RV, which new and modern,nice for what it is and maybe just maybe I’ll love long enough to leave something behind besides a legacy of pain and paintings. I’m sorry for the pain and tears I’ve caused in this life and hope those who knew me before can find the forgiveness in their hearts as I’ve found for them and the way I perceive the way things happened. Either way not much matters anymore it’s been years since I’ve spoken with you yet not a moment has passed that teats Haven’t fallen from eyes and broken heart. I do not understand how I can be so unforgivable to you.
I’m not painting nor inspired to paint. I’ve spent the last four years healing but sadly chasing a dream I’d never see to the end. No tiny house, no air BB nothing of merit for my time and unappreciated efforts. I’ll be leaving here as soon as can . Off to find a peaceful place to spend my last few years of healing, laughing and loving the few people that find me tolerable. Best wiahes to all those I’ve come to know, maybe I’ll write again before it’s all done. If not please know I loved my time with my friends and family while I had them. I wish more of you had taken the time to find out what I was going through or even asked what it was like. I wish that during this massive shifts in .y reality that I was able to communicate better. To articulate what it’s like to go through 35 radiation treatment directly to your head, to go through 10 chemotherapy treatments without anti nausea medication. *Clashed with my pd meds* I wish could have spoken more precisely about what it feels like to not have dopamine in my body. Anyhow it doesn’t really matter at this point those whom have forsaken me have done so long enough ago to have their choices . Now we all simply live and die with those choices.
I will miss you, as I’ve done every day since the moment I was asked to leave . Please remember that it wasn’t my choice for everything to change. It truly was a thing that just happened, nobody planned for me to sick, nobody could foresee that I’d be highly sensitive to ropineral and it’s deviating side effects and that in course of time it took to understand my medication and the new normals of Parkinson’s that it destroy everything I’d spent a lifetime working toward .
On that note , with great love and sadness I say adieu. I hope to check in from time to time on my Instagram and here. I believe my email and phone are listed here on the site . Be well and may whatever faithe you hold dear give you peace in life . Always, Benjamin, Father and brother.
It’s been years and I don’t know why. A long time ago a change came. It tore everything we knew apart from the seams. So many things I wish would have could have been said before the fog came and took me away. It’s wasn’t by my hand that these things came to be. I know nobody understands what it’s like to not feel anymore. The chemicals in your head that everyone uses to decern right from wrong , clear and not clear. The spaces in-between the choices made no longer exists for me. I don’t see the splash from the water before it comes. I do see the sun before I feel it’s heat. One plus one doesn’t equal two anymore. I forget what it’s like to be me anymore. What can say. I miss you, your laugh, your eyes and your smiles. I miss our lives together and don’t understand why we couldn’t still be a family separated but still be a version of what we were. People do all the time, divorce is sadly become a normal excuse for failing to communicate. To my dear son and daughter Andersen and Isabella. Please know how much you are loved , cherished and missed . Every second of every day since I was asked to leave our family I’ve missed you. In the darkness of cancers grip I kept your faces close. There were days that the dream that we could be in each other’s lives again kept me alive. In the dark of desert when Paula took everything from me it was your faces that kept me from letting the evil of this world take my life from me. I spent the entire time I was supposed to be healing from cancer defending myself from people who should have been helpers instead of hindering. I made choices in those years because I had to, none of th choices were good. But what was I to do??? Nobody was there , everyone figured I’d be dead by know. 25% chance to life isn’t a very good diagnosis especially when I already have Parkinson’s. If I could change the way things happened I would, but I can’t the only thing I can hope is that you remember the man who raised you would have and still would give his life to save you from danger. Please remember I have always loved you and never wanted to be away from my children. I love you, be safe and make good choices. I’m easy to find when you’re ready. I love you, I miss you. Be safe
Love, Dad. Benjamin
Sneek peek of works in progress and lots more to come
Hi, thanks for stopping in.Well I kinda like to call it the wiggles it sounds better than tremor or dyskinesia. Another day up 3am slept from 4p-3a I guess this is kinda my way hiding from the world. When I’m asleep I’ve a chance to sort it all out, hopefully wake up refreshed. As funny as it sounds I’m dreading going back to my house. Not so much because I’ll be alone but because I’m afraid of the wrath of a scorned woman. No offense ladies you know I love ya but y’all can get a little destructive.
See mostly guys are silly and reactive. A guy will say fine be a bitch. A woman on the other hand will go into another room and drop your favorite coffee cup of 25yrs down stairs, say oh baby I’m sorry what we’re talking about,(evil grin)
**FICTIONAL STORY*** really just making a point. So yeah I’m a bit timid when it comes to going home tomorrow.
I think the worst part about this whole experience is well obviously that everyone involved got hurt in some way. That’s never ever okay. But so many things were said and done wrong, misinterpreted or just plain ignored. I guess that’s what happens when passion looses compassion. I tell ya it’s F’ing horrible. Any how. My dear friends who have been keeping me safe during this month are back from their east coast trip so know I’ve someone I can chat with face to face and for me that huge. I’ve always been a very visual and have a really hard time interpreting text conversations. So having real humans to hug and speak to see key for me right now. Throughout most of this month I’ve had to make some serious choices without the one person I’d grown close to. Life, sheesh kicking my ass these days. Any here’s a bit paint and an almost done “Angel Heart”
These piece of wood was chosen specificly for its gain pattern painted and textured against the grain hives natural depth changes and I feel adds to the organic look I wanted for this piece. I keep going right back to a Japanese pottery techniques that uses gold inlay but I have to do it at the right time or the depth won’t be righy. Anyhow I’m rambling.
Much love and light.
“A life on hold”