Good morning. It’s been roughly two years since I’ve done any real physical therapy. Sure I get around pretty good with my cane most of the time and I’m physically capable as most things human males can be, I just tend to over do it a bit. Today I go see the best of the best, in Parkinson’s physical therapy, at least in my area. 8:30a pt 9:30a ot 😬these guys are gonna destroy me today lol. See, the thing is. These guys don’t know me from Adam, so today is going to be all bout baseline testing. Which in simple terms, they say GO!!! Then I do whatever test as fast and as hard as I can…..sound familiar.. Don’t smile 😂😂😂 seriously though, it’s a long painful process in figureing out what this body needs since PD has a habit of changing rapidly,then not changing for years.
So my little freak out with katelyn was a prime example of a shift, meds not balanced with body/mind needs coupled with lack of support and over stressed. We were a time bomb waiting to go off and didn’t even know it. Oh well. Live,love,learn. It was good to live a little more before the serious work of staying alive continued. These days I don’t spend my time rushing to and fro handling everybody else’s business. I stay home, water and replant the gardens in the mornings, paint in the afternoons, nap early evening and then cook with friends and family in the evenings. See I’m not allowed to cook by myself. 😓😓😓 the first night I came home in July (long sad story) I tried to make some rice. Managed to not burn down the house but did manage to kill one nice pan and server thousand grains of rice. Since then the rule is. I stay in the kitchen when I’m cooking or I don’t cook alone. PERIOD!
I’ve been up since around 3a I tend to not sleep well at others homes, even though where I’m staying in Portland is perfect. Best friends from kiddom have a home here. It makes it easier to do medical stuff in town when I can come up and stay the night.
Anyhow I said I’d start writing about PD daily or try at least.
**scale 1-10 1= no to little pain and discomfort 10=ER time.
overall physical discomfort: 6-7
** so if 5 is my normal level of ouch, which is half way between I feel great (1)and take me to the ER(10). Today is a 6-7 my pain level is high, very stiff,rigid and un balanced. lol. story of my life. 😂😜😂. Anyhow hopefully that makes sence. most people go to the Dr. in stage 5-6 pain level i start my days in more pain than people (normal) ppl live with. i think most survivors of chronicle illness do, but i dont honestly know. Example: lastnight I had to ask someone to go to the store for me because my right hip was locked up so tight I couldn’t walk that far. Parkinson’s disease is fickle and often changes symptom types during the day. Right then its thursday so hang in there, one more day of the work week then you can go play.
Cheers and much love.
live, love, laugh. its a shorter ride than you think.
It rained last night and washed the last bits of you away.
the gardens have come back after the wrath and destruction of your love.
the birds have come home and winds sing a diffrent somg these days.
one of support and friendship.
one born years ago, destined in some way to become part of this story.
why, how and now?
I could never dare to say…..
but the rains came today and washed the last of you away…..
i am me, he and we. I am stronger than my demons.
more smart than the obtrusive thoughts that used to plague
I too remember the days you slept away
while i guided 1/2 of your flesh and bones….
Not my job, nor should it ever have been…
I am whole, I am here and I am free to live as I see fit.
my love, my loves.fear not as
i crumble into the sea, as you watch me quake and shake my way through the bad days.
these bones are tired so tired…
yet this heart and mind so full of passion to live,love and thrive.
The rains came today and washed the last bits of you away… sad really the way things parted.
but without this my dear, my life would have never really started.
I’ve found my shiny, my glittering heart, my once in a life time whom now ive met twice.
Sometimes the universe remembers it’s nice.
but alass i must pray, that here i will stay.
for here i am wanted, a fresh start everyday.
so this my dear friends is where i shall play
for all of my years and one extra day.
On this darkest day oh hollow man shed this wanten skin….Bleed no more for these these things
That cause pause to a soldiers heart.
Such fragile breath on angels wings
Bared ones heart to scissored strings.
Never more shall I go into the darkness alone.
Never more shall I throw stones,,In glass houses.
Never more shall I sing of things to the tune of a def ear and blinded eye.
Silent such voided love and fill this cup with pain and paint.
Fill this vessel oh world of wonder for this knight grows long in the hall of unrequited love..
Born of mystery and misery…. Of healing want in one hand and a lovers whip in another..
Fly…fly away with the birds and the bees.
Flowers and trees for these things have no place in this heart of darkness.
These halls are mine.. And mine alone…
Cursed to wander for a thousand , thousand years…
Alone…me and these words…. Me and this paint that grows…
Alone…. or iam i destined to this life? id there a queen fit for my fits and delusions, these sharks and quakes that bury my mind and heart. For the one that heald my hand for better or for worse cast me aside and the beauty queen who said she’d stay lost her way.
Do you dare hold the hand of dying mad man? To watch as the chaos closes my eyes and blinds my mind for the final time here in chapter three of me…..?
words of fear and love spilled blindly these days as hope for a dream in dream that will take home once again for my sword and sheild have grown tired of the fight. I trade these tools of destruction and madness for hoe and shovel,All ove ever wanted is to come home….to plant a garden a fill it with love, art and the reminder that this world is heaven on earth. Someone just forget to us the right story.
I ran with love in my hand like a child unaware to keep the sharp point facing down.I slept with angels and played the Devils and danced beneath the pail moonlight. Just to say I’d kissed the devil and lived to tell.
I trusted full and completely for lies were nothing but rumors and things bad boys did. Thinking I was righteous I won every single fight. Saved every process I met and walked round
Before I knew I was something….. But know I can’t remember. What it was, I’d fought for to long let me charges side to to many years.
Things slipped through my fingers and splash upon the floor,memories that makes stop and linger for a moments time stop. Memories so real they yank the tears from my heart. A stillness came as the chaos washed me clean and there I lay, torn and broken from a childhood of dreams left tortured and abandoned by love and misguided dreams.
Didn’t they ever tell not to tell a lost boy you love him.? For are we not the stewards of love? Are we not the protectors of the small,weak and the uncared for? This love of love has left me split, broken with the desire to love and care. The desire to take all of your problems away and show you the life one can lead free of care of man kinds worry and loss.