I will find another life to lead until then this one I’ve used to death, it’s time is near. I can feel it in my bones and my soul. This heart doesn’t want this life , it’s that simple. People for the last few years have been so vocal about how strong I am , brave for going it alone, cancer, Parkinson’s the trauma of losing a family a house and my past, present and future taken from you. For those of you while been paying attention.. This adventure has sucked . To be honest I’m really just hanging out to see what happens . I’ve almost no motivation or desires for my own personal self anymore. The lack of dopamine in my head literally makes everything bland… It’s hand to explain when one doesn’t have sustained emotions and when I do they are often associated with truama. Why because for the most part since my wife decided I was not in the plan. Then 2 years with Katelyn and I split it’s been nothing but hell with moments of very brief sunshine. PD has made it so I literally can’t tell who’s on my side or not. Visual Agnosia is a horrible thing. Not understand or I should say recognizing the social warning signs until it’s to late has become detrimental to my existence. But here’s the thing, I’m not sure I really wanna live like this. No companion to keep me from making stupid choices or helping me guide through what’s left of this life. Sure soon I’ll take my final tests for DBS hopefully I’ll get in surgery as planned and I’ll be able to tell you guys of what it’s like to have two implants put permanent into your skull and zapped with electrical current. Yay, go me wooohooo ..FML
Some of you may be thinking but why be upset you get this chance to continue to live….. Yes I realize this obviously and I retort I’d say. Have you not been paying attention, what part of my life is good to the point of no return.. well let’s look.
I’ve no home , except for with friends and at 49 that’s kinda a big FAIL. I’ve no job or real prospect to make more money than I currently get and if I do 2 things will happen, if it’s Physical work, which is what the farm and gardens are. I’ll destroy my body in the process because PD and this type of work don’t mix well. 2. I’ll make enough money to have to pay a crap ton of taxes. So let’s see, constantly in pain, constantly unsure if I’m making the right choice,(even about simple stuff) visual and audio hallucinations all day everyday, freezing in place or locked in as they say, losing ones balance and mobility, tendons pulled so tight that you can ear them strum across my bones as I get dressed,walk ….
I’m not even sure where to go from here. This crap plus the normal shit all of the rest of you*us* have to deal with on a daily basis except for in my end , there are no family to help pick up the pieces and for the very very few I do have left. They have their own burdens . Aunts and uncles. I’d never put the full weight of this beast I carry on anyone, so my mom helps when she can but as many of you know ..as.much as. I do love my momma with everything I am. I have no desire to live in th desert again. If a had it my way I’d glass Arizona in heart beat just to disappear that Paula women. Anyhow I’ll die in the pnw or in a village in Europe. That the only place I’ve felt at home since PD kicked in. Canada, Scotland, England (somewhere) or Spain. So there ya go. I’m here at the bottom of this fucked up life looking up at all of you wondering how did I fall so far. Once I had a freaking epic job. 12 years in the video game and electronic field, two great kids and a fantastic wife. A huge house with some land. We had finally made it 😜🤪😜🤪 turns out my mother-in-law hated me so once the PD kicked and the bad medicine , followed by a fuck ton of literally the wrong medications. Remember I was under dx for two years..That’s two years of taking the wrong highly impactful brain medications that WERE THE WRONG ONES. people have met me with such harsh judgement of the last five years . But you know the saddest part of all. Is once a person doesn’t have a family. Nobody is obligated to help. Not like family, family stays no matter what, especially in cases of health. I mean really what kind of person would I be if I’d let either one of my grandmothers die alone..
Then again I guess that’s why I’m sleeping in a bed that’s not mine, with hand me down clothes and broken art supplies. No future, except for the farm and tiny house goals. But to be honest, that’s more for my housemate and his life a legacy for his family. At this point I’m tired, tired of fighting, tired of being alone and tired of trying to explain all this crap to people.. so there you go. My state of mind. And please hold your tongues on the comments. If anyone says oh it’s not been that hard or your blowing this out of proportion.. Be prepared to have me forget who you are completely..This words are not .LET ME REPEAT, THESE WORDS ARE NOT UP FOR INTERPRETATION..this isn’t a story you get assume stuff on. It’s not a fictional adventure tale. It’s my life and I’m giving you the perspective of the human who’s living it. That’s all..
B2020. I’m sure I’ll write more because this is what I have left. When your never going to get better people stop asking how you are… So this is the only way I can speak my truths and not have to burden any one soul.y photos, my writing and hoping to be able to paint a while more before I go. Who knows we shall see. On that note happy Friday for to you time keepers out there. Over and out. Benjamin