Reason 745 why Parkisons disease sucks

7:45;When I’m not actually communicating my brain is fine. When talking though is another story. I’m thinking 409 times faster than my body can process so I lose the ability to effectively communicate or properly execute basic daily tasks, make. Literally overwhelmed visually and audittoraly. Phone calls, schedule tasks, plan, cook, it pretty much sucks butt. There ya go. Life with Parkinson’s disease. Here’s the thing folks, Parkisons disease is a rough one. Nobody knows what’s next, some ppl with PD simply die 😂 really just randomly. Some live long happy lives. Some like me get it young and then it gets interesting. See at my age and skill set I’ve been able to chronicle the madness that is PD. From a strong healthy family man, business leader and community NPO advocate to a bewildered, confused post cancer, advanced now 9 years later with PD. Dementia creeping it’s ugly f#+ker of a face in the shadows. Yes I’ve been lucky to have been able to share my story. To share what it’s like to be torn apart by a society that doesn’t believe in taking care of it’s own, being dis valued by a society that says not fixable is unwanted and unworthy of fair and compassionate judgment. I’m tired and in the middle of what will hopefully be my last rollercoaster for a while. Left high amongst the precipus of a breaking wave told to have faith one last time. This time I’ve truly committed my soul and every last fiber of my being to. I have nothing left to give. No vial ke future to see or dreams to jave that are dependant upon others. So…. Yeah… Parkisons disease sucks. Be kind to each other as the days go by in the end the thought of dying alone is terrifying.

For now and until next time. Over and out

B-2018 #mylifewithparkinsons


5 thoughts on “Reason 745 why Parkisons disease sucks

  1. It makes me sad to read this Benjamin 😦 don’t they have Parkinson support groups near you to talk to people and share your concerns and just give you a regular meet up? Society should care more, it’s making me ask myself what do I do for others whilst I’m so busy all the time, I did go into a care home recently and sing for everyone which seemed to cheer everyone up. It’s ok to feel angry about it too I’m glad you can get things off your chest on your blog but sorry I can’t be more help.

    Liked by 1 person

    • Charlotte thank you so kindly for your support. Things in Oregon have finally become more burndensom than healthy for me sadly. I’ve moved to Bisbee Arizona for a new start on life and love. I’ll still be Painting and writing. I’ll just be doing from a place where I’m loved and embraced for who I am not judged for my ability or inability to manage me parkisonsdisease. Much love and Light Benjamin

      Liked by 1 person

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