14/09/2016~ it begins

Good morning. It’s been roughly two years since I’ve done any real physical therapy. Sure I get around pretty good with my cane most of the time and I’m physically capable as most things human males can be, I just tend to over do it a bit. Today I go see the best of the best, in Parkinson’s physical therapy, at least in my area. 8:30a pt 9:30a ot 😬these guys are gonna destroy me today lol. See, the thing is. These guys don’t know me from Adam, so today is going to be all bout baseline testing. Which in simple terms, they say GO!!! Then I do whatever test as fast and as hard as I can…..sound familiar.. Don’t smile πŸ˜‚πŸ˜‚πŸ˜‚ seriously though, it’s a long painful process in figureing out what this body needs since PD has a habit of changing rapidly,then not changing for years.

So my little freak out with katelyn was a prime example of a shift, meds not balanced with body/mind needs coupled with lack of support and over stressed. We were a time bomb waiting to go off and didn’t even know it. Oh well. Live,love,learn. It was good to live a little more before the serious work of staying alive continued. These days I don’t spend my time rushing to and fro handling everybody else’s business. I stay home, water and replant the gardens in the mornings, paint in the afternoons, nap early evening  and then cook with friends and family in the evenings. See I’m not allowed to cook by myself. πŸ˜“πŸ˜“πŸ˜“ the first night I came home in July (long sad story) I tried to make some rice. Managed to not burn down the house but did manage to kill one nice pan and server thousand grains of rice. Since then the rule is. I stay in the kitchen when I’m cooking or I don’t cook alone. PERIOD! 

I’ve been up since around 3a I tend to not sleep well at others homes, even though where I’m staying in Portland is perfect. Best friends from kiddom have a home here. It makes it easier to do medical stuff in town when I can come up and stay the night. 

Anyhow I said I’d start writing about PD daily or try at least.
**scale 1-10 1= no to little pain and discomfort 10=ER time.

Pain: 5
stiffness: 7
rigidity: 7
balance:unsteady 6
overall physical discomfort: 6-7
** so if 5 is my normal level of ouch, which is half way between I feel great (1)and take me to the ER(10). Today is a 6-7 my pain level is high, very stiff,rigid and un balanced. lol. story of my life. πŸ˜‚πŸ˜œπŸ˜‚. Anyhow hopefully that makes sence. most people go to the Dr. in stage 5-6 pain level i start my days in more pain than people (normal) ppl live with. i think most survivors of chronicle illness do, but i dont honestly know. Example: lastnight I had to ask someone to go to the store for me because my right hip was locked up so tight I couldn’t walk that far. Parkinson’s disease is fickle and often changes symptom types during the day. Right then its thursday so hang in there, one more day of the work week then you can go play.
Cheers and much love.
B. 2016
live, love, laugh. its a shorter ride than you think.


10 thoughts on “14/09/2016~ it begins

  1. To say PD is difficult is an understatement. I admire you for keeping on keeping on, Benjamin. You give new meaning to the expression “Hang tough!” Prayers for you as you go through your day. Wishing you every blessing, J.

    Liked by 4 people

    • Thank you, you too. PD, tricky. Yep. But honestly like anything it becomes the new normal. It’s when I have my moments of “clarity” that are the worst. Moments when I feel “normal” for a few moments….then back to PD. That’s the hardest, it’s like dangling a carrot I front of a hoarse knowing full well you’ll never give that carrot away. 😦 I’m rambling lol. Pre, pt nerves. Be well my friend, it was nice to hear from you again.

      Liked by 2 people

  2. Dopamine dilemmas – they effect us all in different ways, but yours is probably the toughest. My hat’s off to you for your courage and admirable efforts to remain positive and reach out to others.
    (Madelyn Griffith-Haynie – ADDandSoMuchMore dot com)
    – ADD Coach Training Field founder; ADD Coaching co-founder –
    “It takes a village to transform a world!”


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